*“I participated in an Influencer Activation on behalf of Influence Central for Scleroderma Awareness. I received a promotional item to thank me for my participation.”
I find that one of the toughest things about being a working mom is not just staying on top of my crazy schedule and tending to the kids needs. It is doing all of that, and then remembering to take the time to take care of myself as well. The bottom line is that if I am not healthy, then I can’t take care of everybody else very well either. As women it is important to stay on top of health concerns, and the month of June is Scleroderma Awareness month. I wanted to take this opportunity to help raise awareness on a problem that predominantly effects women, and is relatively unheard of. The only reason that I had ever heard of it is that a friend of mine suffers from this disease that according to the Scleroderma Aware website effects only 1 in every 906 people. Even though it effects thousands of people, not many know anything about it.
When my friend told me about it I remember saying “Sclero what?!” I could not even pronounce the word. Forget even knowing what it meant! She explained to me that it is an autoimmune disease that unfortunately they still don’t know the cause of, or cure for. That is why awareness is so important. Research is critical to gaining understanding and developing a cure. The name scleroderma comes from one of the symptoms, sclerosis is the Greek word for hard, and of course derma means skin. Other symptoms can include stiff joints, digestive problems, lung scarring and kidney failure. It can also be fatal. It is basically a progressive and chronic connective tissue disorder triggered by some unknown factor. The over-production of collagen is what causes the thickening, hardening, and scarring of the skin and in some cases internal organs. Collagen is supposed to keep the skin soft, but over production makes it thick and hard. This can then impact the amount of blood the small vessels can then carry to other parts of the body. Most people with Scleroderma also suffer from Reynaud’s where fingers and toes turn white and painful in cold temperatures.
The advise for dealing with scleroderma really are many common sense things we should be doing to stay healthy to begin with, but as busy women and especially moms, we often do not take the time to do. Things like getting enough sleep, avoiding processed foods, moisturizing our skin, and exercise for good circulation, among others.
This June you can help to make a difference in someone else’s life when you pledge to spread awareness for Scleroderma, this rare, often unheard of, disease whose victims are 80% women. You may not be personally affected by it, or know any family or friends who are, but you can still help to spread awareness by taking the pledge to support Scleroderma Awareness Month, and to help find some answers for those who are. Let’s also take a pledge to take care of our health in general. Remember, you will do your best job of caring for others when you are at your best and have taken care of yourself first.
Diana Villa says
I never heard about Scleroderma before! Glad that I find your post and I can educate myself more about it. Thanks! 😀
Aprill says
I’ve heard of Scleroderma, but I do not personally know anyone that suffers from the disorder. Thank you sharing!
Ourfamilyworld says
This is the first time I heard about Scleroderma. Your post is very informative and I am so glad that I had read this.
Myrah - Coupon Mamacita says
Thanks so much for sharing this. I’ve never known anyone suffering from this. I think it’s so great that you’re raising awareness.
Jaime Nicole says
This is such great information. Prior to reading your post, I really hadn’t heard much at all about the disorder. Now I am looking up additional information and checking things out. I am so glad you shared!
Chubskulit Rose says
This is my first time hearing about this kind of disorder and I am glad your shared the info, at least I have learned something.
Jeanine says
I haven’t heard of scleroderma before. I’m glad to read your post and see some information about it. Bringing awareness to these types of things is great.
Pam says
I haven’t heard of scleroderma before, but thank you so much for raising awareness.
Sandy KS says
I have never heard of this disorder. Thank you for sharing the information. It helps making other people aware of things like this. That way people can have more compassion to others when they don’t understand what they are going through.
Ricci says
I didn’t know June was Sclerodoma Awareness Month…thanks for the heads up. Your post was very informative and I love when people are really passionate about something.
Krystal says
I am glad that people are being made aware of this. I am glad there is a month dedicated to awareness!
Julie says
Wow, I had not heard about Sclerodoma. Thank you for raising awareness! I’m going to do more research about this for sure.
Aisha Kristine Chong says
this is such a great awareness – i never knew about it till you told us about it… thank you.
Yona Williams says
I have never heard of Scleroderma until now, and I have come across a lot of different medical terms and conditions. The symptoms sound painful and scary.